By
Mahalia Cummings
Shameka
Andrews celebrated a birthday yesterday, on New Year’s Day. Her
celebration is a reminder that she defied stark odds. Shameka was
born with Spina Bifida, a
birth defect that occurs when the spine and spinal cord don't form
properly. “My parents were told that I wouldn’t live past the age
of 5. And now coming in this new year I’m going to be forty years
old. So to me that in itself is exciting.”
Shameka
is a disability advocate and consultant. She provides workshops for
people with disabilities, their families, and community organizations
in the areas of health and wellness and self advocacy. Helping people
with disabilities — and their families — get the resources that
they need to live the lives that they want to lead. She
coordinates wellness activities, increases participation of people
with disabilities in their communities and runs Ms Wheelchair NY,
which is an advocacy and empowerment program for women who use
wheelchairs. “It’s all about helping women with disabilities
being better advocates in their communities and make differences and
have their voices be heard.”
Shameka’s
journey may have started with self advocacy, but she always hoped
that her actions would have a positive ripple effect for others. When
she graduated from college, she was told that students with
disabilities would not be able to access the stage and walk across it
like everyone else. “They said that we usually pass them their
diploma while they’re sitting in the audience. And I said,
‘I’m sorry, no disrespect to you, but I worked just as hard as
every student in this school. And I am not going to sit in the
audience while somebody passes me my diploma.’
Shameka
loves to take walks, and refuses to let the breakdown of
accessibility standards confine her or others. We talk about
the issue of sidewalk accessibility. When the risk of using a
wheelchair on an icy or unplowed sidewalk is too great, some opt to
drive their wheelchair in the street. Sometimes, anger is drivers’
knee-jerk reaction, and this is representative of how the issues that
people with disabilities face are often marginalized, or
misunderstood. Shameka talks about the value of seeing the full human
being, not a burden. “It’s not a disability issue. It’s a
community issue.”.
Although
she grew up in Downtown Albany, Shameka is now a citizen of the South
End. She can be seen at local events, including protests at Ezra
Prentice, AVillage Thursday meetings or Saturday morning Zumba
classes. Her presence in the community is an embodiment of her
practicing what she preaches through community development. Albany is
one of the few cities to form an advisory committee to better enforce
the American with Disabilities Act. “It
can’t be up to one committee. It has to be the the community as a
whole saying whoever I am, that I am going to do my best. Do my part
to make sure that my little section of the community is as inclusive
and supportive as I can possibly make it.”
Shameka
is also a teacher of meditation. She loves to share the strength she
has found through stretching her mind and body to the height of their
capabilities, despite the external noise. “And
that’s what this work has done for me in my own life, to really
explore and be able to explore my own capabilities of what my mind is
capable of and what my body is capable of.”
Shameka
Andrews embodies self care as a radical force. She encourages people
to love themselves as a rule, despite imposed limitations. “Most
people before they meet me or even have a conversation with me have
already decided what I am capable of. I mean from the day I was born
— that’s how most people with disabilities are presented to their
parents, with a list of things that they will never be able to do.”
Shameka
is also an author.In
2018, she is keeping the door open for bringing readings of her books
and other programs into schools, booking more speaking engagements,
coordinating more health and wellness events, and continuing to share
her story. Shameka’s children’s book, Butterfly
On Wheels,
is about a caterpillar on wheels who can’t wait for her wings. As
for more the possibility of more books? That’s a door that Shameka
has left open, and is excited to see what unfolds.
One
quote she shares before a speech is this quote from Edward Everett
Hale: “I am
only one, but I am one. I can't do everything, but I can do
something. And I won’t let what I can’t do interfere with what I
can.”
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